​In 1984, Gerardo Lotrecchiano and his wife Carmela formed the Cystinosis Foundation of New Jersey. Cystinosis  claimed the life of their son, Gerardo, when he was five years old. Their daughter, Gerardina, was later diagnosed with cystinosis, as well. Surprised by the lack of information and lack of access to information, they teamed with Gaetano DiBenedetto, the President of the organization to host the 1st annual gala event. 


Reaching for a Cure

Learn where our inspiration comes from.

President: ​Annie Basile

​Vice President: ​Giovanni (John) DiMilia

​1st Recording Secretary: ​Laura Chichelo

2nd Recording Secretary: ​Gerardina Lombardi

​1st Corresponding Secretary: ​Maria Turano

​2nd Corresponding Secretary: ​Theresa Venezia

Treasurer: ​Enza Marzullo

​2nd Assistant Treasurer: ​Leonardo Marzullo

​Medical Advisor: ​Dr. MaryJo DiMilia 

​**Board Members**: Giovanni Iacono, Captain Vincent Lombardi, Maria DiMilia, Angelina Marzullo, Carmela Lotrecchiano, Dominick Pugliese


Cystinosis Foundation of New Jersey
​Mountainside, NJ 07092
​(862) 231-5421